9:30-10:35
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Registration, Coffee and Exhibition
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Session A: "Pearls in CF- General issues”
Chairs: Galit Livnat, MD and Michal Gur, MD
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10:35-10:45
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Congress opening- Welcome and introduction
Galit Livnat, MD; Head of the Israeli Society of CF and Head, CF Center, Carmel Medical Center, Haifa
Malena Cohen-Cymberknoh, MD; Head, CF Center, Hadassah Medical Center, Jerusalem.
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10:45-11:00
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“Relax I’m Vaxxed!” Vaccine coverage in CF patients
Lior Tsviban, MD; Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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11:00-11:15
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CF Bone disease, does the pancreas play a role?
Miri Dotan, MD; Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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11:15-11:30
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Does Trikafta influence incontinence in Cystic Fibrosis?
Tomer Israeli, B.P.T; CF Center and Department of Physiotherapy, Hadassah Medical Center, Jerusalem
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11:30-11:45
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"Doctor, I needed a gastrostomy and now I need a diet!" – The effect of Trikafta on bone mineral density, body composition and exercise capacity
Michal Gur, MD; CF Center, Ruth Rapaport Children's Hospital, Rambam Health Care Center, Haifa
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11:45-12:00
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Aquagenic wrinkling of the palms
Eyal Jacobi, MD; Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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12:00-12:15
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Infant spirometry as a predictor of lung function at early childhood in CF patients
Mordechai Pollak, MD, MSc, Paediatric Respiratory Medicine at The Hospital for Sick Children, Toronto, Canada; CF Center, Ruth Rapaport Children's Hospital, Rambam Health Care Center, Haifa
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12:15-12:30
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Measuring KCO in patients with CF - a big headache
Daphna Vilozni, PhD; Pediatric Pulmonary Unit, CF Center, The Edmond and Lily Safra Children's Hospital, Sheba Medical
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12:30-14:00
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Lunch- CF Professional Group Meetings:
- Physicians
- Nurses and Research Coordinators
- Dieticians
- Physiotherapists
- Pharmacists
- Psychologists and Social workers
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Session B: "CF in the new era: Are we close to the end of the tunnel?"
Chairs: Liron Birimberg Schwartz, MD and Karin Yaacobi-Bianu, MD
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14:00-14:30
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New developments and future outlook
Fredrick Van Goor, PhD; Head of Cystic Fibrosis Research, Vertex Pharmaceutical, USA
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14:30-14:45
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Allosteric control of the CFTR protein
Oded Lewinson, PhD, Faculty of Medicine, The Technion-Israel Institute of Technology, Haifa
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14:45-15:00
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SPL84 and SPL23 for the treatment of CF patients - from the bench to patient bedside
Gili Hart, MD; Splisense- CEO
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15:00-15:15
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CF research in patient-derived organoids: personalized medicine and drug development Noemi Stanleigh, PhD; the Genetic Department, the Silberman Institute of Life Science, the Hebrew University of Jerusalem
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15:15-15:45
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Individualized therapy in CF (focusing on patient derived epithelial cells and genetic markers of treatment response)
Felix Ratjen, MD; Division Chief of Paediatric Respiratory Medicine at The Hospital for Sick Children, Toronto, Canada
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15:45-16:25
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Coffee Break and Exhibition
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Session C: “Trikafta treatment, for all?”
Chairs: Michal Shteinberg, MD, PhD and Dario Prais, MD
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16:25-16:40
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Differences in disease severity among different Residual Function Mutations: Data from the ECFS Patient Registry
Meir Mei-Zahav, MD; Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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16:40-16:55
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The impact of ETI on "milder" CF patients - The Israeli experience
Galit Livnat, MD; CF Center, Carmel Medical Center, Haifa
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16:55-17:10
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Clinical response to Elexacaftor/Tezacaftor/Ivacaftor in patients with Cystic fibrosis carrying N1303K and non-modulator responsive mutation
Ido Sadras, MD; CF Center, Hadassah Medical Center, Jerusalem
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17:10-17:25
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The nuts and bolts of the Trikafta era
Eddie Landau, Clinical and Medical Psychologist, MSc, PhD and Dana Serfaty. BSc, MPH; Graub CF Center, Schneider Children's Medical Center, Petah Tikva
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17:25-17:40
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A "heavy" decision – should we start Trikafta in a patient recovering from fulminant hepatic failure?
Michal Gur, MD; CF Center, Ruth Rapaport Children's Hospital, Rambam Health Care Center, Haifa
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17:40-17:55
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Almost or not quite CF-To Treat with modulators?
Michael Wilschansky, MD; CF Center, Hadassah Medical Center, Jerusalem
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17:55-18:10
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The future challenges of CF in the post CFTR modulators era
Eitan Kerem, MD; CF Center, Hadassah Medical Center, Jerusalem
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